RA, FMS & Comic-Con

Standard

Well, I don’t have to use the hydrocortisone cream as my moisturizer anymore. And I can properly descale myself in the shower!  Yes, I am finally restocked on my toiletry items. Benny was putting the items on the conveyor belt at the Wal-Mart checkout  tonight and teased, “It takes a lot to look pretty.”

To which I replied in a serious tone, “Well, it’s not all about looking pretty but taking care of your skin, being well-groomed–maintaining one’s self as one grows older.” There was, however, a twinkle in my eyes as I spoke–of that, I am certain.

And honestly, I was out of everything–exfoliating body wash, night cream, daytime moisturizer, toner, mascara (after so many months, the stuff dries out and what a pain to try to put on without massive clumping), cleansing cloths, cotton balls. There were items I needed for my upcoming trip to Comic-Con International in San Diego–a travel kit for my contacts, mini-toothpaste, a three-pack of reading glasses in case I lose a pair somewhere.  The good Lord knows my poor old body isn’t in very good shape now, particularly after more than six months of inactivity following the car accident. But I can, at least, can make an effort to look presentable, right?

J!-ENT Pictorial Feature: San Diego Comic-Con ...

J!-ENT Pictorial Feature: San Diego Comic-Con International 2011 (Photo credit: kndynt2099)

I hope to do some walking to help prepare for a very busy time of it at Comic-Con next month–if I can avoid the rattlesnakes. Hmmm, maybe I should take a big stick with me? If we can unload all the stuff on the semi-recumbent exercise bike (why do those things always end up as clothes racks?) I want to try to build up my tricky knee. But I have to be careful. If I do too much, I pay for it. If I do too little, I pay for it.

Ladies and gentleman, welcome to the world of Fibromyalgia, with the supporting players osteoarthritis and assorted and sundry other syndromes.  I can assure you my luggage will include some of those nifty ThermaCare heatwraps for back and knees and very likely a folding cane. Just in case . . .

FIBROMYALGIA

FIBROMYALGIA (Photo credit: *SHESHELL*)

Man, looking at that list above, it’s a wonder I do as well as I do!

I am trying to be as prepared as I can, mentally, physically, emotionally (“I will not burst out in tears if and when I see Richard Armitage, I will not let my mouth gape open like a fish out of water, I will be professional, focused . . .) and of course, financially.

Oh, Sir Guy, I am pretty sure they have some ideas along those lines. Trust me.

Thanks much to everyone again for your support and also all your words of support and encouragement. When I was writing for the newspaper, I would periodically receive thank you notes in the mail for an article or a column I wrote. I always prized those and hoarder that I am, I still have them tucked away.  The fact that someone took the time to write a note and send it meant a lot to me.  So never think sharing such words doesn’t make a difference.

Comic-Con is coming July 12-15 in San Diego! And I have my

press associate bar code! Yippee!

If you’d like to contribute to my Comic-Con Trip Fund, please click on the button in the sidebar to make a donation. Or ask me about purchasing one of asilomar’s beautiful sterling silver winged heart necklaces. A generous portion of the $35 cost goes into my fund. Thanks for your support!

15 responses »

  1. I’m glad you were able to stock up. I need to do a similar trip when I get home, but there aren’t any stores like that in Andalucia. Sometimes I think I need to buy moisturiser in kegs.

    Thanks for posting the graphic re. Fibromyalgia. As you know, I have lived with it for many years. People just don’t get it, what it means to live with that kind of chronic pain. No, it’s not wussy little “discomfort”; it’s real 7+ pain that can knock you cold for no apparent reason. THIS and its associates are why you should NOT go walking, especially with the snakes around. What if you got a zinger that knocked you to the ground, right where you seriously annoyed a snake? If you go walking, you wear tall boots and you go with Benny, who has his sidearm loaded. You are not to get snake-bit, ya hear me?

    So get the stuff off the recumbent bike already. Also try some slow leg lifts, ten reps, while you’re watching something, two or three times a day. I promise it works.

    Re. “Oh, Sir Guy, I am pretty sure they have some ideas along those lines. Trust me. ” Yes, we do.

    • I feel better now that I have my lotions and potions again. My skin was oily but clear ( no acne trouble) when I was younger, but it’s increasingly combination as I grow older and the dry patches really do appreciate the moisture. Yeah, I think there is a lot of misunderstanding regarding FMS. The pain waxes and wanes, you have better days and worse days, but you never get over it like a cold or the flu. There was a doctor with a patient who had FMS, and he told her, “You won’t die from it, my dear, but you most certainly will die with it.”

      Thank goodness there is at least research going on and more drugs specific to the condition, although what works wonderfully for one patient doesn’t always for another. I was diagnosed in my mid-30s, but I’d been experiencing the symptoms for more than a year before that.

      I think I will go the bike route. Another issue is with all the rain we’ve had, the grass keeps sprouting up and who knows what might be lurking in there . . . I have also been doing some exercises where I tighten around my knee cap, hold and then release. It was one of the exercises they showed me when I was undergoing Pain and Torture–oops, I mean Physical Therapy after my surgery. 😉

      • Re. “It was one of the exercises they showed me when I was undergoing Pain and Torture–oops, I mean Physical Therapy after my surgery.” I know exactly what you mean. Bloody vicious if you ask me… The PT was prescribed as a “non-invasive” fix, before I finally got a referral to my neurosurgeon because the torture didn’t work. Turns out that the PT probably made things worse.

      • I leave the U.S. on the morning of 20 June and arrive home the evening of 21 June, if all goes well. Even though it’s a decent routing, it’s still roughly 30 hours door-to-door. If I’m not a complete wreck, I should be back online on 22 June. My village is so small, there’s no tower, so no mobile or WiFi coverage. I’ll be talking with a provider that may be able to help if I put an antenna on the roof. Otherwise, I’ll take the train into town the way I have been doing, have breakfast and log on at the cafe.

          • The nearest small city (the one where I st “The Dancer”) is about 25 – 30 minutes by train, which is easy and cheap. It’s only 23 km, but by winding narrow roads that are shared with farm equipment and livestock, it’s easily an hour’s drive. Should all my connections be as good as they are supposed to be, I’ll get the train from Madrid (4 hr 15 min.) to the little city, and then connect within 30 minutes to the local train, which drops me in the village close to my house.

              • Not really. I like a fair proportion of alone time, perhaps because it is something of a luxury after years of living with others whose needs, priorities, and preferences I had to accommodate. Writing is also a solitary endeavor. The beauty of the surroundings feeds part of me, too. Should I be feeling sociable, I have some delightful neighbors, or I can go to the local bar/cafe (live music on Saturday), or I can go into town and see friends. There is an A&E department ten minutes away by car, as I’ve had cause to learn. I will be getting one of those pendants that I can press to contact help (it’s a radio device, designed for people who live alone) so if I fall or something, I won’t be lying there for hours unnoticed.

              • How long have you been living there (if you don’t mind me asking)? And how long did it take you to learn to speak Castellano fluently? I did a Spanish course for beginners a while ago and found it really difficult,especially the listening exercises. And our teacher said they speak much faster in real life! I’d be totally lost in Spain, I think!

              • I have been living in Andalucia off and on since 1995, sometimes being stuck in the U.S. for long periods. I bought my current home in 2000. As for fluency, immersion, my dear, immersion — I spoke enough in 1994 to manage, but true fluency comes with speaking and listening and reading every day because you really you don’t have other options. When your patio floods and you need liquid drain opener, you learn the word for that fast. Or when I knew I was anaemic, I walked into the chemist’s and signed the chemical symbol for iron; I learned the word “hierro”. Then there’s falling in love, but that is a different story. Normally, if someone is speaking too quickly for you to understand, “Otra vez y mas despacio, por favor” is enough to get the person to repeat more clearly and slowly.

  2. you know,Angie that you inspires many people that read your posts.With so many health problems you have passed, you are an optimist and funny person . Other hand you are a lucky woman to have an understandable husband who support you in all, include your RA mania.
    Cheers!
    Btw, your RA pictures continue been the best ones!

    • Thanks, Tereza. 😀 yes, I am very lucky and blessed to have a husband like Benny. Many people who deal with chronic health conditions aren’t so fortunate.

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out /  Change )

Google photo

You are commenting using your Google account. Log Out /  Change )

Twitter picture

You are commenting using your Twitter account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )

Connecting to %s